Poland Syndrome Support

Poland Syndrome | PIP payment (UK only)

Did you know it might be possible to get a Personal Independence Payment if you have Poland Syndrome? Find out more by reading this post

Craft Fair March 2015

Part of what we do is to find different ways to raise funds to enable us to continue raising awareness about Poland Syndrome.

Meeting Poland Syndrome Societies

Trustee Liz went to Genoa to meet with our counterparts from Italy, Spain and France Poland Syndrome Societies in the first of many planning sessions for an upcoming medical conference in 2016. We hope this will be start of a continual blossoming friendship and collaboration.

Bringing Sisters Together

The money we raise at PIP-UK is used to raise awareness of Poland Syndrome, to pay for costs of a website but also to help those in need. This is a short account of a family in need who we supported.

Poland Syndrome | Supporting Parents

We work in lots of different ways to help those dealing with Poland Syndrome. Liz our trustee shares an account from a mother we helped recently dealing with concerns about her child growing up with Poland Syndrome

Advice on Buying a Bra and Swimwear.

Poland Syndrome in girls is less common than men. Reconstructive surgery is an option when a girl is old enough until then here is some useful advice

My Cousin George by Grace McKenna – Age 8

Poland Syndrome seen through the eyes of an 8 year old. Read the story Grace wrote about her cousin George who has Poland Syndrome

Stockport 10K 2013 Fundraising Total

Final update from PIP-UK on our Stockport 10K race earlier this year! Read all about how we got raising money for PIP-UK to continue its work on raising awareness on Poland Syndrome

AGM March 30th 2013

PIP-UK … Important Announcement … AGM to be held … 30th March 2013 at 2PM

And The Winner Is…..

The Car Draw winning ticket has been drawn- And the winner is 051246 A ticket bought from the charity Karmic Angels, who will be contacting the winner. PIP would like to thank everyone who bought a ticket and helped to raise more funds for PIP.  PIP hope you enjoyed taking part in the FSI charity car draw and are pleased to say due to the success of last years raffle PIP will be taking part in the 2013 raffle...

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