Family fun day with our friends at Poland Syndrome Support Group (PSSG). Getting families together to have a great day out. To share experiences and learn from others. The kids love Conkers in Derby which is where the event is to be held. Its Saturday, 20th September 2014.
We found this posted on another website… have a read and tell us what you think. Do you agree?
Aimee Lax wrote to us a few weeks ago asking if she could run for PIP-UK at the Cheltenham Half Marathon. We said yes. Aimee’s nephew has Poland Syndrome
Using finger braces as a therapy for Poland Syndrome was a new discovery for us. We spoke to Crystal about this who has recently started this therapy today she shares her story with us.
One of the characteristics of Poland Syndrome is that one hand is smaller than the other. The hand may webbed fingers, fused fingers or missing fingers altogether. We share a short story we found about this physical appearance.
Poland Syndrome discussed in a court case. After a man is made to change his attire due to a new uniform and then publicly harassed he takes the company to court.
Poland Syndrome a rare birth defect causes visual differences that are noticeable children making them easy targets to be be bullied at school. But what happens when the join the workforce?
“For every action there is an equal an opposite reaction” – Sir Isaac Newton. Newton was of course referring to physics theories but we believe today’s short story means it can apply to the human race too.
We love #charityhour on Wednesday’s 8-9pm we’ve met lots of amazing charities and people. We’ve learned a tremendous amount in that short space of time. We also get to share what we learned. This is what happened when we chatted with Community on Board.