Poland Syndrome Support

5 tips for charities using Twitter

Our top tips for charities using Twitter are based on 18 months of testing and learning. At PIP-UK we have discovered Twitter is a great networking tool where you can learn useful hints and tips from other small charities. Today we’d like to share what we’ve learned over the last 18 months. After trying and testing out lots of different tools, techniques and ideas. 1. Build Your Own Twitter Network We...

Poland Syndrome – Family Fun Day Out at Conkers

Family fun day with our friends at Poland Syndrome Support Group (PSSG). Getting families together to have a great day out. To share experiences and learn from others. The kids love Conkers in Derby which is where the event is to be held. Its Saturday, 20th September 2014.

Poland Syndrome | Advice for Parents?

We found this posted on another website… have a read and tell us what you think. Do you agree?

Thank You Aimee

Aimee Lax wrote to us a few weeks ago asking if she could run for PIP-UK at the Cheltenham Half Marathon. We said yes. Aimee’s nephew has Poland Syndrome

Poland Syndrome | Finger Braces

Using finger braces as a therapy for Poland Syndrome was a new discovery for us. We spoke to Crystal about this who has recently started this therapy today she shares her story with us.

Short Stories | One Hand Smaller

One of the characteristics of Poland Syndrome is that one hand is smaller than the other. The hand may webbed fingers, fused fingers or missing fingers altogether. We share a short story we found about this physical appearance.

Poland Syndrome | Court Case

Poland Syndrome discussed in a court case. After a man is made to change his attire due to a new uniform and then publicly harassed he takes the company to court.

Short Stories | Workplace Bully

Poland Syndrome a rare birth defect causes visual differences that are noticeable children making them easy targets to be be bullied at school. But what happens when the join the workforce?

Short Stories | Buying Gloves

“For every action there is an equal an opposite reaction” – Sir Isaac Newton. Newton was of course referring to physics theories but we believe today’s short story means it can apply to the human race too.

Sharing Insights With Community on Board

We love #charityhour on Wednesday’s 8-9pm we’ve met lots of amazing charities and people. We’ve learned a tremendous amount in that short space of time. We also get to share what we learned. This is what happened when we chatted with Community on Board.

« Previous Entries

Copyright PIP-UK Poland Syndrome Charity 2015 | Designed by Tkey. | Based on Puretype by Elegant Themes